What is a family directory?

Beck-Fahrner Syndrome was first identified in 2020. What started as just a few diagnosed individuals is starting to grow into a much larger community. To help facilitate connections between impacted families, the Beck-Fahrner Syndrome Foundation maintains a confidential directory of families affected by a Beck-Fahrner syndrome diagnosis. This family directory allows us to help connect newly diagnosed families with others in their geographic area and maintain a count of diagnosed families.

If you are a newly diagnosed family and wish to join our directory, please complete our form below.

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