Portrait of 6-year-old girl living with rare disease unveiled at Children’s Minnesota
By: Nick Petersen
Children’s Minnesota Blog – Patient Stories
Published October 25, 2024
Genetic testing for rare diseases is hard to find if you live in rural Kansas, but now there’s help
By: Bek Shackelford-Nwanganga
Kansas News Service, KCUR
Published September 10, 2024
Ashley Clifford is one of only 50 people with Beck-Fahrner syndrome
By: Megan Doherty
The Canberra Times
Published June 16, 2023
