Find strength in our community

Join our seasonally held virtual parent social hours to connect, support, and learn from other families affected by Beck-Fahrner syndrome. Our virtual parent social hours begin at 8:30pm EST / 7:30pm CST. All parents and/or caregivers of children affected by Beck-Fahrner syndrome are welcome. Please register in advance using the link below. We may be rare, but we are not alone.

April 19, 2024 8:30pm EST / 7:30 CST

July 19, 2024 8:30pm EST / 7:30 CST

October 18, 2024 8:30pm EST / 7:30 CST

January 17, 2025 8:30pm EST / 7:30 CST