Find strength in our community

Join our monthly virtual parent social hour to connect, support, and learn from other families affected by Beck-Fahrner syndrome. Our virtual parent social hour occurs on the first Thursday of every month at 8:00pm EST / 7:00pm CST. All parents and/or caregivers of children affected by Beck-Fahrner syndrome are welcome. Please register in advance using the link below. We may be rare, but we are not alone.

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